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Rare Disease Community Prepares for Worldwide Observance of Rare Disease Day


 

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The last day of February will once again be observed as Rare Disease Day this year. This annual observance draws together patients, researchers, clinicians, and others to promote awareness of rare diseases and advocate for research, treatments, and access to care for patients. NIH will host a Rare Disease Day event open to the public and also available by webcast. Registration is open now.

NORD will host advocacy and awareness events at state capitol buildings across the country. In addition, NORD is working with students in several medical schools and on university campuses to organize events at which patients, researchers, and clinicians will speak.

For information about Rare Disease Day activities in the U.S., visit the national website hosted by NORD. To learn about events taking place around the world, visit the international website hosted by the European Organization for Rare Diseases (EURORDIS).

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